In March of 2008 I began treatment for a potentially fatal heart arrhythmia whose cause was unknown. I was fit and healthy, having spent a good part of my adult life as an elite cyclist, much of it racing in Europe.
After 5 years of fence-sitting on the part of my doctors, I have been given a diagnosis of ARVD/C (Arrhythmogenic Right Ventricular Dysplasia / Cardiomyopathy). I lack the known genetic markers for the disease as well as some of the structural changes that accompany ARVD/C, and my condition has shown no indication of being progressive (yet).
There is a growing population of current and former endurance athletes who end up with acquired arrhythmias, and a diagnosis of ARVD/C. But by placing these athletes in the ARVD/C patient population, we are potentially ignoring the very real likelihood of an acquired condition, similar, but different, from ARVD/C.
This blog is written as a resource for athletes with acquired arrhythmias, as well as anyone about to undergo endo or epi-cardial ablation, or the implantation of a ICD. It is also written to help generate some critical mass of interest in support of further research into acquired arrhythmias in endurance athletes and others. Feel free to contact me through the comments page if you have any questions or wish to make a written contribution to this blog.
Saturday, August 17, 2013
Jumper cables, anyone?
After two years of silence, I'm kicking this spaceship back in to action. There are two reasons for this, the first, is I had a bunch of harrowing heart adventures over the past year that I probably should have been sharing. The second is that somewhere in New England there is a guy going through almost exactly the same series of events I went through when my heart began acting up 5+ years ago, and he's blogging about it and it is worth the read. So, if anyone still tunes into this blog, mouse on over to the Wayward Cyclist while I pull together my adventures of the past year and all the fun new things I've learned...