Welcome

My name is Craig Mitchell Cook. In March of 2008 I began treatment for idiopathic ventricular tachycardia, a potentially fatal heart arrhythmia whose cause is unknown. I was fit and healthy, having spent a good part of my adult life as an elite cyclist, much of it racing in Europe.

V-tach, ventricular tachycardia, is the most obvious, and lethal, symptom of my condition. There are a number of diseases and diagnoses that are near matches to my condition, the closest being ARVD/C (Arrhythmogenic Right Ventricular Dysplasia / Cardiomyopathy). Indeed many doctors would classify me as an ARVD/C patient, yet I lack the genetic basis for the disease as well as the structural anomalies that accompany ARVD/C, and my condition has shown no indication of being progressive (yet).

There is a growing population of current and former endurance athletes throughout the world at all levels of sport have exhibited similar symptoms to mine. Some have been diagnosed with ARVD/C, others have run a gamut of varying diagnoses differing from cardiologist to cardiologist and electrophysiologist to electrophysiologist, some have not survived their symptoms. These acquired arrhythmias require different scales of intervention, none of which necessarily match another. I, for one, have undergone numerous procedures and currently sport an Internal Cardioverter / Defibrillator (ICD). Other athletes I have been in touch with have had wildly different treatments and results.

There is a growing body of evidence that would seem to support the hypothesis that endurance sports might have a long-term negative effect on the healthy operation of the heart. While the jury is very much out on this point, the subject is worth more study than it is currently afforded, and the tendency to lump endurance athletes with ARVD/C mimicking symptoms into the ARVD/C patient population is potentially ignoring the very real likelihood of a different, as-yet named non-genetic, acquired condition, apart from ARVD/C.

This blog is written as a resource for athletes with acquired arrhythmias, as well as anyone about to undergo endo or epi-cardial ablation, or the implantation of a ICD. It is also written to help generate some critical mass of interest in support of further research into acquired arrhythmias in endurance athletes and others. Feel free to contact me through the comments page if you have any questions or wish to make a written contribution to this blog.


Saturday, November 19, 2011

Overdue Update

Greetings all! It is near the end of 2011 - over a year since I last posted - and my radio silence is due to a persistent lack of drama coming from the four chambers. Thanks to all the people who wrote me over that time, and wondered whatever became of me. Three years out from my last round of ablations and the status quo is pretty much as I described in my last post.
In that time I've become somewhat overly-employed, a good development in my chosen career of architecture, which is generally on the skids in the current economy. As a result, my training regime is less than I'd like, but more than most 50-60 hour a week workers. My heart has shown no ill effects, though I notice several consistent trends, what I call cardiac "noise". These have always existed, since my surgeries, but they come and go.
The first:
Low level angina (chest discomfort), mostly when I have either done too much exercise with too little ramp up, or have spent too much time sedentary - say more than 2 or 3 days. In the first instance, if I go out for , say, a 4 hour ride, and have not ridden or ran in the last few days, I sometimes feel a dull discomfort late in the ride and some time after. This is sometimes accompanied by PVCs, but nothing more.
The second:
Random and capricious PVCs. At no particular time for no particular reason. They are rarely persistent and I have not been able to connect them to diet, drink, or stress. They just happen. But they are far, far less than what I used to experience before my surgeries. When I am consistent with an exercise regime the PVCs pretty much disappear.
The third:
End of day/evening PVCs. Particularly on my bike commute home. These I attribute to hunger, and going from 10 hours behind a desk to a brisk, slightly uphill ride home.
That is about it.
My exercise program is this:
1 to 2 early morning weekday bike rides before work. Usually an hour long, fairly up tempo because they are short. I only live two miles from my workplace, so I head out to the 'burbs on the bike and do the commute I'd have to do if I lived there.
1 to 2 early morning weekday indoor roller rides, 1 hr each. These are done fairly easily. My rollers don't have much resistance so this is mostly about form and spinning.
1 to 2 short runs. Most of the time this is only the two-and-change miles to work, occasionally more.
Some weeks the run replaces the roller ride and vis versa, weather generally decides. If its raining I run. If its super cold I roller.
Weekends are more involved, mostly a minimum 2.5 to 3 hr ride each day.
To give you some sense of the overall load, my Garmin tells me I will have ridden just shy of 5,000 miles this year, at an average speed of 18.2mph, not including indoor riding, of which I've done about 63hrs this year thus far. Running-wise I will be at a mere 150 miles by the end of the year (I stopped running in the summer), at an average 8 min. mile (yes, we cyclists are weak on foot!)
All this is to let you know that there is life after cardiac ablation, even multiple ones, from all sides. And there is life with an ICD. Mine sits there, beneath my collarbone, neglected. I haven't even "checked-in" with my electrophysiologist in nearly a year. I wonder about it long-term, and the fact that it will need to be replaced, and the fact that it presumably saved my life once, and will it ever again?
My competitive athletic career is well behind me, but keeping active is a vital part of life, and seems to be the best thing I can do for my particular, unique, heart problem. And so I press on...
Until the next update!
Craig

1 comments:

jigeum_jue said...

I have been one of those, who have been wondering how you've been doing. I also have ARVD and an endurance runner, who had to scale down a lot after being diagnosed. I continue to run, but not competitive anymore. I focus a lot on warming up and cooling down to regulate heart rate during the run. I also feel that exercising moderately prevents the weird feeling in my heart. I'm also finding ways to lower heart rate with exercise, healthy eating, and ample amount of sleep. The doseage of Sotalol also helps a lot (I haven't been shocked in almost a year.)

In the past, I would get shocked post-activity or post-exercise usually days after the event. The medication and no more "hard runs" have made life better.

All the best, and keep us posted periodically!