Welcome

My name is Craig Mitchell Cook. In March of 2008 I began treatment for idiopathic ventricular tachycardia, a potentially fatal heart arrhythmia whose cause is unknown. I was fit and healthy, having spent a good part of my adult life as an elite cyclist, much of it racing in Europe.

V-tach, ventricular tachycardia, is the most obvious, and lethal, symptom of my condition. There are a number of diseases and diagnoses that are near matches to my condition, the closest being ARVD/C (Arrhythmogenic Right Ventricular Dysplasia / Cardiomyopathy). Indeed many doctors would classify me as an ARVD/C patient, yet I lack the genetic basis for the disease as well as the structural anomalies that accompany ARVD/C, and my condition has shown no indication of being progressive (yet).

There is a growing population of current and former endurance athletes throughout the world at all levels of sport have exhibited similar symptoms to mine. Some have been diagnosed with ARVD/C, others have run a gamut of varying diagnoses differing from cardiologist to cardiologist and electrophysiologist to electrophysiologist, some have not survived their symptoms. These acquired arrhythmias require different scales of intervention, none of which necessarily match another. I, for one, have undergone numerous procedures and currently sport an Internal Cardioverter / Defibrillator (ICD). Other athletes I have been in touch with have had wildly different treatments and results.

There is a growing body of evidence that would seem to support the hypothesis that endurance sports might have a long-term negative effect on the healthy operation of the heart. While the jury is very much out on this point, the subject is worth more study than it is currently afforded, and the tendency to lump endurance athletes with ARVD/C mimicking symptoms into the ARVD/C patient population is potentially ignoring the very real likelihood of a different, as-yet named non-genetic, acquired condition, apart from ARVD/C.

This blog is written as a resource for athletes with acquired arrhythmias, as well as anyone about to undergo endo or epi-cardial ablation, or the implantation of a ICD. It is also written to help generate some critical mass of interest in support of further research into acquired arrhythmias in endurance athletes and others. Feel free to contact me through the comments page if you have any questions or wish to make a written contribution to this blog.


Thursday, May 22, 2008

Defibrillated!


Above is the latest physical manifestation of my condition: the welty burn mark of a defibrillator paddle on my right pectoral.

The backstory: Monday May 19th I was carted off to the cardiac cath lab at U Penn for a follow up electrophysiology study (EP) to determine if the first round of radio-frequency ablation had been a success. Briefly, an EP study is a standard cardiac catheter procedure, in my case the catheter is threaded into a vein through an entrypoint in my groin, it snakes up into the heart and from there it gathers information about the state of things.

For my condition the electrophysiologist "paces" the heart, trying to induce ventricular tachycardia, first with electricity, then with drugs, then with a combination of the two. The hope is that I am un-inducable and then I get to go home with a clean bill of health and start my life again -more or less. That did not happen.

First I produced unsustained V-tach, minor things lasting a few seconds. Next were a few longer runs of sustained V-tach, and finally a seemingly endless run. The last run I was in VT for about 30 seconds when Dr. Marchlinski starting fretting, and ordered the defibrillator prepped. First he waited a bit to see if I would come out of it on my own. As anyone who's watched a made-for-TV medical drama you know there is a specific order of commands before defibrillation. In my case the technician pulled the trigger on the wrong command. I suspect I got hit at the moment I was starting to come out of V-tach naturally. I've been in V-Tach a few times and never had to be defibrillated. Furthermore normally when they defibrilate a conscious person they hit you with sedation right before they defibrillate. My nurse was in the process of injecting my IV when I got shocked, so I felt the full voltage with zero medication. It was pretty bad, the equipment around me had not been pulled away so I was slammed into a monitoring unit about six inches above my head and chest. When it was over the first thing I asked was if I still had all my teeth. I can't say its like anything I've ever felt. Apparently the technician was new, when it was over Marchlinski gave him a serious dressing-down.
So the upshot of this EP study: All the remaining origin sites of the VT were on the outside of the heart, so no ablation was done. Dr. Marchlinski wants to go in from the outside, performing an epicardial ablation, a proceedure that has only been done since 2000. It requires going in under the sternum, and is a full day of surgery with full anesthesia. Dr. Marchlinski is confident about the location of the site, it is far away from areas of the heart that might be damaged by epicardial ablation, and he thinks it will be successful. He claims a 100% success rate for all epicardial ablations he himself has performed (the national average I looked up is 84%)
After that he is definitely recommending the ICD, as with all V-tach patients there is no guarantee that there won't be a relapse. One thing we learned with the accidental defibrillation is that I won't go into the continuous loop of shock-V-tach-shock that Dr Marchlinski was worried about before.
So my return visit is now scheduled for the week of the 2nd of June. With both the surgery and ICD it will be 4 to 5 days in the
hospital, and wil likely require more recovery than my past visits. The ICD limits activity for the 6 weeks post-implantation in
order to allow the leads to "bed-in" to the heart.

4 comments:

TOCQ said...

oh craig! this is hard for me to read. thanks for the information, though, i am glad to know the latest on your condition. all the best, be well. good luck!

- aefghi

John said...

all the best of luck partner
cat

Craig said...

Craig, feel better and try to slow down... just a bit.

bikesgonewild said...

...jeez, craig...just picked up your info at nyvelocity...i'm a frequent blogger at a number of cycling sites but being a heart patient, i thought i'd get in touch...

...& what a story to come in on, when you've just been zapped by an amateur...it does sound though, that your doctor was able to ascertain knowledge from the techy's screw-up, so that's some kind of a bonus...

...my situation was a little more straight forward mechanical, so i'm not intimately familiar w/ all your technical jargon but as a layman i can fairly well 'grok' it...

...it sounds like you have faith in your dr marchlinski which is the the way to go...i had complete faith in my now retired heart surgeon, dr elias hanna & his team...

...these guys are amazing in their work & they will have you 'good to go', dude...hope to hear from you...