tag:blogger.com,1999:blog-6633435959278648203.post1194211730250622440..comments2023-06-14T12:37:44.488-07:00Comments on Exercise-Induced ARVC/D: Stage One: Epicardial Ablation, the grim detailsc2http://www.blogger.com/profile/08064499587835453992noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-6633435959278648203.post-67693911080418794302019-08-08T00:45:53.267-07:002019-08-08T00:45:53.267-07:00Thank you so much for sharing informative blog. Ho...Thank you so much for sharing informative blog. Hope you continue to share more of your ideas. I will definitely love to read. Keep up the good work! <a href="http://www.stereotaxis.com/" rel="nofollow">VT ablation</a>Sapnahttps://www.blogger.com/profile/12282618852134374878noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-3301759528335444342011-12-22T07:44:23.978-08:002011-12-22T07:44:23.978-08:00Greetings. I found your blog, as I was looking fo...Greetings. I found your blog, as I was looking for information about epicardial ablations. I myself, am facing an dual epicardial and endocardial ablation in the next month or 2. I was told by my doctor that my recovery would only be a one night hospital stay, and for the most part would not be any worse than my initial endocardial ablation from 2010. I am just curious, what did they tell you about recovery time before your procedure? Were you aware before hand that you would require a defibrillator, or was that an outcome as a result of your 2nd ablation?Anonymoushttps://www.blogger.com/profile/14473181769372456392noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-12036102005913419172011-10-19T18:39:36.334-07:002011-10-19T18:39:36.334-07:00Thank you for sharing your story. My son is 17 yea...Thank you for sharing your story. My son is 17 years old and until may 10th of this year a healthy active teenager. He was diagnosed with Sustained v tach. he has 4 cardiac ablations and 1 ep study. all of them unsucessful. we have also tried several medications and 3 differnt specialty hospitals. At this point we have no idea what to do. He had his last ablation about a week ago and yesterday his v tach came back. Today he has sustained the v tach for about 10 hours.<br /><br />medic8203@gmail.comPeach2013https://www.blogger.com/profile/02501581481752424101noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-3566246598970376012011-10-07T01:02:17.760-07:002011-10-07T01:02:17.760-07:00Craig,
Thanks for the thorough walk through of the...Craig,<br />Thanks for the thorough walk through of the procedure. Mine is being scheduled now. I have read many articles written from the medical (doctor) standpoint. This one helped me the most. Hope all is well with you!Jonathanhttps://www.blogger.com/profile/15513960239940267771noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-82374223714419320462011-07-29T00:20:32.577-07:002011-07-29T00:20:32.577-07:00Dear Craig,
Thank you so much for sharing your ex...Dear Craig, <br />Thank you so much for sharing your experience. I am very interested in your story and was hoping for an update to see how you are doing, especially your results with the epicardial ablation. Thanks again for sharing!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-87049758310635094302011-07-14T18:42:47.414-07:002011-07-14T18:42:47.414-07:00Dear Craig,
As a canidate for epicardial ablation...Dear Craig,<br /><br />As a canidate for epicardial ablation I thought I best not read your blog... but I couldn't resist. You are one hell of a writer and a tough guy. Thanks for the story... it's appreciated. <br /><br />I have had two implanted defibrillators (ICD) for close to ten years with almost no shocks, it was smooth sailing until now. In January I suddenly blacked out and hit the ground hard just before the ICD revived me. Lucky I was just standing on the patio. Four days in ICU. This was the second shock in six weeks albi it that one didn't include the blackout. <br /><br />I am 80 years old and lucky to have gotten this far and fairly undamaged. The amiodarone drug I use to control the VT has pushed me near the limit. Last week I had a unsucessful endocardial ablation with complications (ventricle puncture) at the University of WA. Not a fun procedure, five days in ICU but almost no pain involved. <br /><br />The next plan is hope the VT will subside and smooth out with epicardial ablation as a backup option. Amiodarone can be tolerated for just so long before the side effects eventually catch up with you.<br /><br />Hope you are doing well after your medical adventure and living a normal life.Jim Raffnoreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-59381400523225850402011-04-23T13:12:43.296-07:002011-04-23T13:12:43.296-07:00I've had an ICD for a year with two episodes o...I've had an ICD for a year with two episodes of three shocks close together for which i was hospitalized and three other isolated shocks. now on amniodorone and scheduled for an ablation in two weeks. wish me luck.SteveUnknownhttps://www.blogger.com/profile/14347304905511570685noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-7232291814620362642010-05-18T14:17:14.704-07:002010-05-18T14:17:14.704-07:00can someone email me if you have had epicardial ab...can someone email me if you have had epicardial ablation for vtach? i suddenly had ideopathic vtach for 5 days.....3x per day at least. now i have an icd. i am on metropolol. would love some feedback. nancytruro@comcast.netAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-87121628447629389292008-08-14T19:17:00.000-07:002008-08-14T19:17:00.000-07:00why were you not given any anti-anxiety meds? i fi...why were you not given any anti-anxiety meds? i figure some ativan would help with post-surgical anxiety.scttkrkwdhttps://www.blogger.com/profile/14548447934027902426noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-77371828510092243512008-07-23T07:31:00.000-07:002008-07-23T07:31:00.000-07:00Hello Craig,Been anxiously hoping to hear how you ...Hello Craig,<BR/><BR/>Been anxiously hoping to hear how you are doing (that you are well) in your next install; single or dual chamber ICD? how are you doing with ICD? how are your arrhythmias (better or worse than before ablations both endo/epicardially)? are you acclimated to your med/s and/or mineral prescriptions, and/or device adjustments? have you found a support community/ies of others who have gone through similar experiences? learned any of the tips for better quality living with your diagnosis and device?<BR/><BR/>Which brings up the question of diagnosis. Do you have a diagnosis? Have you received a 2nd or 3rd opinion on your diagnosis based upon your original records, subsequent records?<BR/><BR/>Your story sounds so familiar to those of some hundred or more atheletes I know. The latter were diagnosed with ARVD/C. I can't help but wonder if this is your diagnosis. If you have been diagnosed with ARVD/C, I have so many more questions. If you have not been diagnosed with ARVD/C, I wonder if you have had ARVD/C experts look at your records.<BR/><BR/>Yours truly,<BR/>Tink<BR/>ARVD-ARVC-Info.comUnknownhttps://www.blogger.com/profile/14138384016655922451noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-63549899619218570612008-07-22T10:52:00.000-07:002008-07-22T10:52:00.000-07:00Dear Craig, Thank you so much for sharing your exp...Dear Craig, <BR/>Thank you so much for sharing your experiences on this blog. I am the managing editor of a monthly medical journal called EP Lab Digest, and I recently came across your blog site, where I've been following your story. I am always interested in publishing articles about the patient perspective -- I believe this is something that is often missed in other medical journals. Please contact me if you would be interested in writing about your life and your experience with ventricular tachycardia for our journal. I can be reached at jelrod@hmpcommunications.com. In addition, for more information about EP Lab Digest, please visit our website (www.eplabdigest.com). <BR/>Best regards,<BR/>Jodie Elrod, Managing Editor<BR/>EP Lab DigestUnknownhttps://www.blogger.com/profile/03291476528912615425noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-87127988990880919042008-07-03T14:18:00.000-07:002008-07-03T14:18:00.000-07:00hang in there craig. sending support from nyc.liam...hang in there craig. sending support from nyc.<BR/><BR/>liamelkuehttps://www.blogger.com/profile/11002946214914910451noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-89816281016453878662008-07-03T09:24:00.000-07:002008-07-03T09:24:00.000-07:00You are one tough dude!Thanks for sharing this. I...You are one tough dude!<BR/><BR/>Thanks for sharing this. It's appreciated.Etorohttps://www.blogger.com/profile/02483463664997548488noreply@blogger.com