tag:blogger.com,1999:blog-6633435959278648203.post782325566539560338..comments2023-06-14T12:37:44.488-07:00Comments on Exercise-Induced ARVC/D: To "D" or not to "D"?c2http://www.blogger.com/profile/08064499587835453992noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6633435959278648203.post-58069259034707667882009-10-01T15:17:21.403-07:002009-10-01T15:17:21.403-07:00Hi Craig,
I'm 35 years old and have ARVD/C. I ...Hi Craig,<br />I'm 35 years old and have ARVD/C. I had my first PVC at 20. Got it checked out, no big deal, I only got the odd PVC at 170+ bpm which I could handle.<br />Then when I was 32, suddenly I started getting PVCs at 140 bpm. I pushed myself, went into v-tach, and got it checked out. <br />In the last 3 years, I've trained - like you said. My diagnosis, like yours, was suspected ARVD/C. Ejection fraction 60+%, no structural damage on MRI, only delayed potentials on signal-avgd EKG. So i didn't meet the ARVD criteria, my doc said - exercise away. So I did. Two years later, I wish I hadn't. Now I get PVCs at exercising at 100 bpm (or less if i exercise for a long time), and even get PVCs at rest. ARVD is progressive, and if you exercise you make it worse and it doesn't get better. I was also crazy about sport, but luckily I have other interests that keep me busy now.Jim Dowlinghttps://www.blogger.com/profile/06334659492165169076noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-10658533615944185532009-05-18T17:25:00.000-07:002009-05-18T17:25:00.000-07:00Craig,
I have read your entire blog and find your...Craig,<br /><br />I have read your entire blog and find your condition somewhat similar to mine, except I've experience SCD and 5 shocks from my ICD for sustained VF events. My docs have no explanation for my condition - idiopathic VF - I don't really get a chance to feel my heart race other than feeling faint, as my bpm shoots from 110 to 300 triggered by 1 PVC. To make matters worse my docs have conflicting opinions as to whether an ablation will prove successful. I'm now loaded with b-blockers and restricted (endlessly) to activity that is under 110bpm....so painful.<br /><br />Like you I'm searching for answers as to why someone that can pull 13.6 mets on a stress test with a max hr of 210 and no other physiological issues and a healthy heart with an EF of 66 suddenly becomes crippled with this problem. I found the training while sick issue interesting, as I often trained on college crew while sick.<br /><br />Though your trek wasn't without challenges, it is promising that you were able to resume a somewhat active lifestyle. I hope all is still going well for you - any updates?VFhttps://www.blogger.com/profile/04179740655373494500noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-81005436153308820212009-04-10T08:16:00.000-07:002009-04-10T08:16:00.000-07:00Dear Craig,I don't know if Dr. Marchlinski is righ...Dear Craig,<BR/>I don't know if Dr. Marchlinski is right or not.<BR/>I'm not an expertise It's sure that all strenuous exercise (excluded low speed walking on flat) cause blood pressure increase during the exercise itself. <BR/>The study of my friend Francesco (not a Dr. at all) shows that only exercises at minimal specific muscular contraction guarantee no blood vessel constraints, that means low blood pressure.<BR/>(Like for a mechanical membrane pump when we increase the pressure losses, for example squeezing the output pipe).<BR/>How to show that?<BR/>Give a look to this video: http://www.youtube.com/watch?v=tOyrm4tl2ck<BR/>Only to show what I mean for a decontraction state.<BR/>This is not a definitive answer but it should be an occasion to start a positive discussion around an efficient and clever use of the human body.<BR/>Experts in heart deseases and rehabs should properly answer to this question.<BR/><BR/>Good luck.lunalanderhttps://www.blogger.com/profile/02290297538303247638noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-89709591018860589172009-04-05T04:39:00.000-07:002009-04-05T04:39:00.000-07:00Hi Craig - I came across your blog last week as my...Hi Craig - I came across your blog last week as my husband was in the hospital recovering from his 8th ablation. He was diagnosed in March 2006 with ARVD. He was 59 years old, involved in fitness all his life, mostly weight training and competitive bodybuilding, came home from work as a police officer and had some chest pains due to an irregular heart rate of 240. He was transported to the ER where he converted back to normal rhythm without shock and after a few trips to the cath lab was diagnosed with ARVD. There begins the long story from the past three years. He had an ICD placed back in 2006 and has not been incident free. Actually he has not been able to go more than five months without incident since then, despite the fact he's had numerous ablations. I've always wondered about his ARVD diagnosis, he just didn't fit the criteria. However, there isn't any other explanation at this time for his disease. We're not sure about the progression at this point. Anyway, this is the very short version of a long story. I just wanted to send you a quick note, to say hello, not too many people out there with living with this disease - ironically I'm the cyclist in the family! Good luck and I'll continue to read your blog for updates. KarenAnonymousnoreply@blogger.com