tag:blogger.com,1999:blog-6633435959278648203.post5946887991177626405..comments2023-06-14T12:37:44.488-07:00Comments on Exercise-Induced ARVC/D: Stage Two: ICD Implant: The Grim Detailsc2http://www.blogger.com/profile/08064499587835453992noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-6633435959278648203.post-32950706539349270142012-05-08T20:11:22.118-07:002012-05-08T20:11:22.118-07:00Hello,
My thanks go toa ll who contributed to thi...Hello,<br /><br />My thanks go toa ll who contributed to this blog so I have some objective experience with this. Soon to undergo this procedure I am very concerned about its overall immediate impact upon me and its long term affects. Actually scares the hell out of me, but syncope, the root of my evil, along with other deconditioning of the heart is no pleasure either. Ironically, I was a mid-distance runner in my early years, later a competitive figure skater, and an avid skier. The irony is all these activities are healty and good well being activities. Finding my self, as others have, is more bittersweet than I care. Many thanks again.<br /><br />Sam H.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-6612926009017706632012-03-29T16:16:00.172-07:002012-03-29T16:16:00.172-07:00Thanks for making the blog...
I'm on my fourth...Thanks for making the blog...<br />I'm on my fourth device (First ICD was implanted at 16). My most recent was implanted 6 days ago. I'm not an elite athlete, but am a competitive runner and mom of 3 (drug free natural deliveries.<br /><br />Everytime I get a replacement device my doctor comments how difficult it was to remove. The upside to such a deep pocket (since the devices keep getting smaller), it is hardly noticeable or obtrusive once it does heal.<br /><br />Good luck!EP in SOhttps://www.blogger.com/profile/03279384092412558843noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-20229523915925283662011-10-31T05:38:23.571-07:002011-10-31T05:38:23.571-07:00Thanks for the reply Craig.
I phoned up the hospi...Thanks for the reply Craig.<br /><br />I phoned up the hospital where the operation was done to enquire whether the pressure on my collar bone was normal. I spoke to a nurse there who specialises in ICD implants. Any way she said it's probably nothing to worry about as it should naturally fall slightly. I go back to the hospital for a check in 1 months time so she said we'd see what it's like then, and that if it still causing discomfort it will be possible to re-position it.<br /><br />Thanks again for your help<br />NeilNeilhttps://www.blogger.com/profile/12559939424127661532noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-76649722918727513572011-10-29T18:36:46.609-07:002011-10-29T18:36:46.609-07:00Hi Neil,
Luckily I just checked in on this much-ne...Hi Neil,<br />Luckily I just checked in on this much-neglected blog. As I recall I felt pretty immobile and vulnerable the first 48 to 72 hours post-implant, but things got better quickly. I don't recall having trouble getting out of bed, but I do remember having to roll over awkwardly and use my right arm to push myself up. As far as the collarbone sensation you describe, that seems odd for a sub-pectoral implant, the implant should sit well below the collarbone. If you feel it hitting the collarbone you may want to have that checked out. Mine is so low I can feel the bottom side of my ICD through my armpit. <br />Hope this helps. Best of luck in your recovery.<br />Craigc2https://www.blogger.com/profile/08064499587835453992noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-89204306322598044262011-10-29T02:11:14.162-07:002011-10-29T02:11:14.162-07:00Hi Craig,
Thanks for your your very informative p...Hi Craig,<br /><br />Thanks for your your very informative post on this subject. I had a subpectoral placement of an ICD 4 days ago and was hoping to ask you a couple of questions (though I don't know if you still read comments from this due to the fact you posted this 3 years ago.) Basically I want to know if you experienced the following:<br /><br />1. Unable to get up from laying down to a sitting up position without help.<br />2. A very uncomfortable feeling that something is putting pressure on your collar bone.<br /><br />I'm just worried about if maybe the ICD might of fallen out of place since the doctors didn't mention these things to me.<br /><br />Thanks for your help<br />NeilNeilhttps://www.blogger.com/profile/12559939424127661532noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-50477543424046012002010-04-13T10:36:00.377-07:002010-04-13T10:36:00.377-07:00Thanks for the write up bud. I've just turned ...Thanks for the write up bud. I've just turned 31 and am going in next tuesday for my ICD implant. I'm also quite slim so will be getting a sub-pectoral implant. I had a loop recorder put in and taken out previously and didn't enjoy the experience much at all. This sounds like it will be a whole lot worse, and I hope that sedation numbs me enough so I don't feel anything.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-66658432589205606602009-10-21T07:54:22.279-07:002009-10-21T07:54:22.279-07:00Craig,
I have HOCM (hypertrophic obstructive card...Craig,<br /><br />I have HOCM (hypertrophic obstructive cardiomyopathy). I was diagnosed in April of 2006 at age 48. I had open heart surgery ( septal myectomy) at the Cleveland clinic to remove my obstruction on 9/11/08. Yesterday my cardiologist informed me that I will need an ICD due to my runs of V-tach as well as needing to take Coumadin the rest of my life. Quite a shock (no pun intended) to say the least.<br /><br />I appreciate your candor and look forward to more of your thoughts!<br /><br />Good luck!werick58https://www.blogger.com/profile/05321003465545716527noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-45837328964444372692009-02-10T10:40:00.000-08:002009-02-10T10:40:00.000-08:00I feel your frustration. I was a 40 year old woman...I feel your frustration. I was a 40 year old woman, thin and very active. I am a Certified Nursing assistant which entails a lot of lifting, I was diagnosed with Cardiomyopothy, and was put on meds, but later went into congestive heart failer and needed the ICD implant. I am thin so mine was very noticeable. With in a year of having the ICD I got a letter from Medtronic saying my modle number had faulty leads. Talk about feeling like a walking time bomb. My Doc set an alarm in it to worn me of mal function. About three months later at work the ICD ripped out of the socket it was placed in and free floated in my chest for about 4 more months, the pain of that was hard to take. My Doc then decided to move it, he replaced the leads and moved it to my right side in my chest, hooked it on my muscle, with in a week back to work it ripped again, he said he had no other place to put it, so I got a second opinion. Last Feb I had the first sugery to go from left to right, in July I had another surgery putting it behind the right muscle in my chest. and now 7 months later it has slid at least 2 inches and has turned side ways and it constantly pulls in pain and in my arm, I now have loss of circulation in my right arm and my hand is always cold and purple. I don't know if having this thing in my chest is worth all of the pain and surgeries I have gone through, I had to quit my job that I loved because it was to much for my body to take with this ICD. If anyone has any information for a different location it could be placed in could you please let me know? Thnks, Lisa ScottUnknownhttps://www.blogger.com/profile/04298711813077058980noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-6826458911106944172008-10-08T23:08:00.000-07:002008-10-08T23:08:00.000-07:00I found your site searching for ICD surgery, somet...I found your site searching for ICD surgery, something I just went through myself, but for a different type of heart condition. I'm 32 and was concerned about an ICD prohibiting me from doing the activities I like, and so far, 2 1/2 weeks out of surgery, I'm worry-free. I have a newer-generation ICD and it's thinner than ever, with a longer battery life than ever. Take a look at my recovery photo on the link below to see how far things have come with sub-muscular implants. <BR/><BR/>http://amyandrich.blogspot.com/2008/10/healing-up.htmlAnonymoushttps://www.blogger.com/profile/15149942081343170238noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-48926463984684856822008-08-24T07:29:00.000-07:002008-08-24T07:29:00.000-07:00It certainly makes tough reading. It seems as if t...It certainly makes tough reading. It seems as if the op has been a success. Knowing you I'm sure the alien will not hold you back from living life to the full. We are all rooting for you here. You have all the family's love and big hugs from Julia and Oona<BR/>Michael & Lauramhttps://www.blogger.com/profile/07654289755500897147noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-79151103445922761392008-08-08T22:21:00.000-07:002008-08-08T22:21:00.000-07:00Craig, I am moved by your story and impressed by y...Craig, <BR/><BR/>I am moved by your story and impressed by your courage. As someone who has sometimes had to restrict his exercise for health reasons, can I suggest yoga? You can do a very vigorous practice and never get your heart above 110. If you go to a class you don't like, try another one--there are practices sufficiently challenging to engage endurance athletes.yourcenourhttps://www.blogger.com/profile/16610821997190397701noreply@blogger.comtag:blogger.com,1999:blog-6633435959278648203.post-5647189171659684242008-08-01T10:13:00.000-07:002008-08-01T10:13:00.000-07:00Craig,This pains me man and I know for you it prob...Craig,<BR/><BR/>This pains me man and I know for you it probably pains you more. Though knowing you and your great personality, it seems you are making the best of the situation. Sorry that I haven't been there for you in person - though you have been in my thoughts and prayers since I was made aware of your condition. <BR/><BR/>I hope you have a speedy recovery and that you adjust to your new life. Your passion for the bike is sure noted and I am confident that you will be out there again riding. Maybe not racing though, riding and enjoying scenery and life. <BR/><BR/>With love and friendship,<BR/><BR/>Ray AlbaRayhttps://www.blogger.com/profile/05723818956391660145noreply@blogger.com