Check it out...I'm (kind of) mixing it up in the final sprint! Never thought I'd come this far so fast (Follow the arrow...that's my white shoulder and yellow tire, about 10 places back from the winner Lisbon Quintero). Photo: Alvin Poblacion, nyvelocity.com
Lately I've been doing a lot of research on R. Buckminster Fuller, the inventor /designer perhaps best known for his geodesic domes. Fuller was a visionary and an eccentric of a bygone era who sometimes called himself "Guinea Pig B", a reference to his decision to consider his life a constant experiment. Well, this weekend, I put on my Buckminster Fuller hat and checked into my own personal experiment: bike racing with a heavily ablated heart and an Internal Cardioverter-Defibrillator.
Depending on one’s approach the fact of me bike racing again could be considered remarkable or dangerous. At my last follow-up my doctor gave me the go-ahead to compete, but a good many doctors would not. My defibrillator alone is reason enough, the fact that my heart condition is terra incognita is another reason to stay away from racing. The official recommendation of activities for patients with ICDs is as follows (from EP LabDigest.com):
“The Bethesda Guidelines1 on sports participation consider that the risk to compete athletically with an ICD is unacceptably high. The guidelines indicate that individuals with an ICD should not be involved in sports more active than bowling and golf (even though these also have not been shown to be safe either) regardless of the underlying heart disease.”
Clearly this is conservative; these are blanket guidelines, they cannot not take into consideration each individual’s situation. My condition since my last ablation has been utterly stable, and my progress as far as fitness is concerned, counter-indicates any likely negative consequences. There is always the possibility of a run of V-tach coming out of nowhere, but in all my training that has not yet happened. If it did I would surely reconsider. But even then, I tend to be self-cardiovertable. My ICD is set to shock me at 222bpm, a rate I have not seen since last spring, in between ablations. The non-sustained V-tach I’ve experienced since then has only rarely gone above 200bpm. So the likelihood of being shocked while racing is very small.
The other big concern is crashing and damaging my ICD or “pulling out” a lead. This is where things get dicey. Crashing in bike racing is unavoidable. I’ve had very bad wrecks that have landed me in the hospital on multiple occasions. The most common bike related injury is a broken collarbone, and the ICD sits just below the collarbone.
Despite 20+ years of competition, and dozens of crashes, I’ve never broken a collarbone, or any bone. This does not mean it can’t happen at the next race, but I like to think that it is more than just luck that has kept me out of trouble. If I continue to race (the jury is still out) I will pick my events judiciously, avoiding known “crash-fests”, and race only in high category events or master’s races where, we like to imagine, age trumps foolhardiness.
Of course, from the perspective of crashing, the whole enterprise is foolhardy, so I’ve concocted an ICD protector (see previous post). I’m also in the market for a non-homemade pad, so if anyone has any ideas, let me know (I imagine there must be something designed for marksmen, for gun recoil?)
"So," you ask..."how did the race go...?" Stay tuned...
Living, riding (and sometimes racing) with Exercise-Induced Arrhythmogenic Right Ventricular Cardiomyopathy
Monday, June 29, 2009
Thursday, June 25, 2009
Seriously, don't call it a comeback...
Back in the day when I could kick it...(photo copyright Marco Quesada, nyvelocity.com)
Apologies for the inconsiderate blogging. My last post was Saint Patrick's day, and the luck has been coming thick and fast since then, with not much time to process it all or any real interest in dwelling on my good fortune lest I lose it. First thing: As of mid-April I have been declared ARVD-free, leastways I don't have any of the currently identified genetic markers. As I detailed in other posts, this was the last hurdle to pass over in my return to health. To some doctors, the lack of genetic ARVD markers does not mean one is in the free and clear regarding exercise, but because of my athletic background and my continued improvement over the past months with regular moderately strenuous exercise, I have been given the OK to start a full training regime. And, providing I take precautions (see photo below) even with my ICD, Doctor Marchlinski says there is no clinical reason why I shouldn't race again.
Now, since this news, there have been many limiting factors to my return to competition. The greatest is, of course, that I have a life off the bike which is somewhat demanding. Architecture school greatly limits the time one can devote to extracurriculars. Then there is the question of motivation in a 40 year-old whose best years are surely behind him. The biggest motivation to race again is to prove to myself that I can get back to some semblance of what I was, minus some snap and speed. Lastly, I still have a fear of the "top end", operating at or above my threshold, and the sharp accelerations that one must endure in bike racing. Acceleration and max-threshold training are the two things I have not yet done since I started riding again. But let me give you something of a chronology...
My homemade ICD protection: an old chamois and an Ace bandage
January to March continued as I had detailed in prior posts (Extreme Cardiac Rehab), in which I did a light load of training 4 to 8 hours a week max, much of it running. In April, with the weather improving and more hours of daylight, I increased the load to 6 to 10 hours a week, phasing out the running mid-April and throwing in an occasional 3 hour ride. My body responded well, I would have occasional PVCs while training, but there would be days when I'd not notice a single errant beat. The cardiac "noise" -occassional discomfort- would come and go. I've since accepted these phenomenon as facts of life, they don't really bother me. Rarely I'll have a flurry of PVCs, particularly if I have to stop short from a sudden effort, but they are few and far between. I make a point of checking my pulse at my neck (the best place to detect PVCs) each time I have to come to a stop, say at a red light. It's an odd posture, having one's hand on one's throat at every light, but it's reassuring to know everything is smooth, and when it isn't I am more attentive and trim my efforts.
When I got my genetic testing back I released myself from the 165bpm limit I had set. From mid-April on I would let my heart get up into the high 160s low 170s, but only in a gradual, controlled manner, never in a rapid acceleration or sprint. And these efforts were rare, they'd happen organically, as on a hill, or on a rare instance when I felt like doing a cruise interval. Basically I stuck to whatever felt good and didn't push myself inordinately.
Now, for the past month or so, more and more feels better and better: more distance, more speed, more effort. And I am having a standard issue training response: my training data is exactly as it should be, I can do more and more with less and less. My weight has come down, my speed over certain test-circuits has gone steadily up. Everything is exactly as it should be for the amount of effort I have been putting in. My training has held steady at 8 to 12 hours a week since mid-May, a fraction of what I used to do, but I couldn't be happier for it.
I had a follow up visit with Dr. Marchlinski at the end of May. My ICD is set to record my heart at 166bpm, and sure enough, starting in April I had many moments of monitoring recorded on my device. It is reassuring to know that I can compare the data from my Garmin GPS/ heartrate monitor that records my training with my ICD data and see that both devices are spot on accurate. (actually the Garmin seems more sensitive to moment by moment changes, the ICD is looking for arrhythmias and all its getting is healthy sinus tachycardia, it doesn't differentiate between 166 and 168 bpm for example. I would like to know if it can print out rhythm strips of my heart when I am at that level of effort, if only to see how frequent the PVCs are. At anything above 150bpm a PVC is hard to discern unless it comes with friends.)
So that is the status as I prepare for my race debut this Saturday. It will be a club race in Central Park, the place I began racing and the territory I am most familiar with. I am nervous mainly because my riding to this point has been predominantly solo and having to respond to other peoples accelerations and the ebb and flow of a peloton will be new.
My two concessions to my condition will be: a) my homemade ICD protector (a chamois pulled out of an old torn pair of shorts (clean, I swear)) and b) a promise to myself to not get too distraught if it all proves to be too much.
I promise to keep this channel updated....
Subscribe to:
Posts (Atom)